|Eli and Isaiah around the time Eli was diagnosed|
with severe hemophilia (Spring 2008)
"Hey, buddy. I want to talk to you about your baby brother. Daddy and I just found out that he has something called hemophilia. I don't know a lot about hemophilia yet, but I am going to read some books and talk to some people who do know a lot about it so I can learn. You will learn a lot about it too.
"Sometimes, hemophilia might seem a little scary. See, when Eli gets a boo boo or bumps his head too hard, we might have to take him in to the hospital so they can give him his medicine. He may even get hurt when you two are just playing.
I want you to know that that's just how hemophilia is and you don't need to worry.
"Treat him the way you know you should treat anyone. Remember:
-No hitting with your hands or anything in your hands.
-No throwing toys at anyone unless you are playing catch with something soft.
"As Eli grows up, you will be silly boys together, have pretend sword fights, run, and play super heroes. Don't let his hemophilia scare you. Mommy and Daddy will take good care of you all. Eli is so blessed to have you as his big brother. You are already teaching him so many wonderful things!
"I have one new job for you, okay? If Eli gets hurt and you see what happened, it is really important that you tell Mommy or Daddy or another grown-up exactly what happened. You need to be really brave and tell us even if YOU hurt him. Don't worry about getting in trouble. We will be very thankful to you for telling us the truth. Then, you can help take care of him.
|Eli and Isaiah August 2012|
"Here's some great things you can do to help:
-Go get an ice pack from the freezer.
-Put on one of his favorite shows to cheer him up.
-Get him his favorite toy or blanket.
"I know this is a lot to understand right now. You can always ask me or Daddy anything you want to know. If you ever feel sad or angry, you can always tell us and we will listen. You are a very special little boy, and I am so glad Eli has you."